Hello all, I am letting you know that things are going well. I don't have any word yet from my neurologist regarding when I will start on the new therapy.
It is all tangled up in the red tape of my insurance company and also the strict guidelines they have for receiving Tysabri.
Keep in mind that Tysabri must be delivered intraveniously, only administered by a nurse who has been fully trained for this medication specifically. They are referred to as the "Touch" certified nurses. I first to read and agree to then sign the application to receive Tysabri.
This whole process has been a little overwhelming but I understand why they have these precautions.
For those who do not know, his is the most agressive MS therapy at this point. Unfortunately some of the patients have actually died from this.
Some of thse close to me are sacared of this and think that I should not go this route. I am at the point that I am sick of this dramatic progression, I must stop it if at all possible.
If it's my time then so be it. The one good side to this is that I will be at the hospital so if anything goes wrong I will be in capable hands.
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my MRI has been added to the bottom of this page.
ReplyDeletenotice the right side center there is a faint image that's abnormal.To me it looks like a skull but the radiologist labled it as a key.
maybe it's a skeleton key?